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Author Topic:   Cancer Survivors
Zawi
Member (Idle past 3738 days)
Posts: 126
From: UK
Joined: 12-02-2004


Message 16 of 325 (375091)
01-07-2007 8:14 AM
Reply to: Message 15 by jar
01-06-2007 9:34 PM


Team EvC = 49
This thread has moved me to join the team (we're on 49 members as of 15 minutes ago). I use a 3.2 GHz computer with 2 gig of RAM, though it only has 1 gig storage capacity at the moment, unless I can figure out how to utilise my second hard disk.
My grid doesn't appear to be making any progress though. I don't know whether it's the way I've set it up, or the way the system works. EDIT: oh, it just went up a percent, cool . It'll probably take a day or two to finish this project.
The application graphics look fascinating, though I wonder if there's a way that I can see a more indepth description of the project that my computer's currently working on. I'm sure I'll find out soon enough...
Edited by Zawinul, : No reason given.
Edited by Zawinul, : No reason given.

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DorfMan
Member (Idle past 6189 days)
Posts: 282
From: New York
Joined: 09-08-2005


Message 17 of 325 (375329)
01-08-2007 10:56 AM
Reply to: Message 1 by RAZD
01-03-2007 10:30 PM


I cannot believe how
handsome you are without hair, bear.
May it comfort you to know that this 'fundie' is for stem cell research.

This message is a reply to:
 Message 1 by RAZD, posted 01-03-2007 10:30 PM RAZD has replied

Replies to this message:
 Message 18 by ringo, posted 01-08-2007 1:44 PM DorfMan has not replied
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ringo
Member (Idle past 520 days)
Posts: 20940
From: frozen wasteland
Joined: 03-23-2005


Message 18 of 325 (375386)
01-08-2007 1:44 PM
Reply to: Message 17 by DorfMan
01-08-2007 10:56 AM


Re: I cannot believe how
DorfMan writes:
May it comfort you to know that this 'fundie' is for stem cell research.
It would comfort this "gunfighter" more to know that your computer is on the Grid.

Help scientific research in your spare time. No cost. No obligation.
Join the World Community Grid with Team EvC

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 Message 17 by DorfMan, posted 01-08-2007 10:56 AM DorfMan has not replied

  
nator
Member (Idle past 2277 days)
Posts: 12961
From: Ann Arbor
Joined: 12-09-2001


Message 19 of 325 (375400)
01-08-2007 2:32 PM
Reply to: Message 1 by RAZD
01-03-2007 10:30 PM


RAZD,
You are in my thoughts.
Fight hard, man!
(Pssst...you look damn good bald!)
Edited by schrafinator, : No reason given.

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RAZD
Member (Idle past 1513 days)
Posts: 20714
From: the other end of the sidewalk
Joined: 03-14-2004


Message 20 of 325 (375516)
01-08-2007 10:17 PM
Reply to: Message 17 by DorfMan
01-08-2007 10:56 AM


Re: I cannot believe how
Thanks.
... this 'fundie' is for stem cell research.
Not surprised, know what I mean?
Message 18
It would comfort this "gunfighter" more to know that your computer is on the Grid.
We need one more to get to 50 on the team ... not that I want to buffalo you.
Edited by RAZD, : buffalo
Edited by RAZD, : .

we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
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Replies to this message:
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Omnivorous
Member
Posts: 4001
From: Adirondackia
Joined: 07-21-2005
Member Rating: 3.5


Message 21 of 325 (375519)
01-08-2007 10:33 PM
Reply to: Message 1 by RAZD
01-03-2007 10:30 PM


RAZD writes:
I expect to survive this round, and come out riding 59 miles in august this year ... and getting my hair back.
Hair is overrated, gumption is not: so I expect you to kick some lymphoma butt, my friend.
If you do come to bone marrow transplant, let us know: I would gladly undergo histologic compatibility testing if you have difficulty finding a match, though my marrow would probably scandalize a normal man.
Shouldn't bother you, though.

Drinking when we are not thirsty and making love at any time, madam, is all that distinguishes us from the other animals.
-Pierre De Beaumarchais (1732-1799)
Save lives! Click here!
Join the World Community Grid with Team EvC!
---------------------------------------

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duf31
Inactive Member


Message 22 of 325 (375587)
01-09-2007 6:52 AM
Reply to: Message 1 by RAZD
01-03-2007 10:30 PM


50

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jar
Member
Posts: 34125
From: Texas!!
Joined: 04-20-2004
Member Rating: 3.2


Message 23 of 325 (376321)
01-11-2007 7:24 PM
Reply to: Message 20 by RAZD
01-08-2007 10:17 PM


Thanks to the members at EvC
and a call to the many thousands who have not yet joined.
Team EvC is now at 52 members. If we can just get 2 more new members to sign up this month, and then only 4 additional members each month for the rest of the year, we can reach our goal of 100 members by the end of 2007.
EvC has literally thousands of members so finding only 100 to help fight cancer and MD and AIDs and to help with Genome folding and the other worthwhile projects should certainly be possible.
Come on down folk. We need your help.

Aslan is not a Tame Lion

This message is a reply to:
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RAZD
Member (Idle past 1513 days)
Posts: 20714
From: the other end of the sidewalk
Joined: 03-14-2004


Message 24 of 325 (380772)
01-28-2007 7:31 PM
Reply to: Message 1 by RAZD
01-03-2007 10:30 PM


3 down 3 to go
I've had my third chemo for this session, and am certainly feeling the effects in terms of energy level, aches and pains.
http://just-cancer.e-healthsource.com/index.php?p=news1&i...
quote:
WEDNESDAY, Nov. 17 (HealthDayNews) -- For years, doctors have puzzled over the fact that some patients with follicular lymphoma succumb to the deadly blood cancer within a few years, while others survive for decades, even though their tumor cells look the same under the microscope.
Genetic differences -- not in lymphoma cells, but in immune cells surrounding the tumor -- may determine how aggressive a particular case of follicular lymphoma turns out to be, they said.
He said studies have already shown that treatment with immune-based anti-cancer vaccines "does result in remission in some patients."
Follicular lymphoma is a type of white blood cell cancer from the non-Hodgkin's lymphoma family of lymph node malignancies. Follicular lymphomas involve the uncontrolled growth of a specific type of immune white blood cell, called B lymphocytes. The disease makes up about one-fifth of all non-Hodgkin's lymphomas, with an incidence rate of about six cases per 100,000 persons per year, experts say.
Unfortunately, research into controlling follicular lymphoma has yet to achieve the success seen in other blood cancers, Staudt said.
"In essence, chemotherapy isn't able to prolong the survival of these patients," he said. "It's given to them, but it's not curative."
Still, oncologists have long noticed that some patients with follicular lymphoma die with two or three years of diagnosis, while others live with the disease for upwards of 20 years or more.
Genetic comparisons of aggressive vs. less aggressive cancers have so far turned up no major differences, so Staudt and his team decided to investigate the genetics of immune cells living in the immediate vicinity of the lymphoma.
Examining tissue biopsies from 191 patients, the researchers found that "it was the [genetic] character of the immune cells that was dictating whether you had a very slow-growing form of follicular lymphoma, or a more rapid form," Staudt said.
"This may help in the decision of how to treat the patient," he added. "For example, if a patient has a bad prognosis, one might decide for a more aggressive treatment, because standard treatment may have little chance to increase the life expectancy of the patient."
A more accurate prognosis should also help clarify the future for worried patients, Staudt said. "Imagine that you have a lump -- of course you're very concerned, and it comes back [from biopsy] with a diagnosis of follicular lymphoma. But in the next sentence, your doctor says, 'But the median survival of patients with your type of follicular lymphoma is between 10.8 and 13.6 years.' That's going to give you a whole different outlook on your disease."
Staudt said research into a follicular cancer vaccine is already under way, using lymphoma cell antigens to "prime" nearby immune cells to attack the malignancy.
"In some patients, it clearly makes their tumors go away," he said. "To me, that's another indication that this tumor is one of the cancers that can respond to the immune system."
The more you know about a system the more you are able to handle it eh?
Mine is aggressive and I am getting antigens - as I did the first time. So far it seems to be knocking the tumor cells out, but I don't hold much hope for complete eradication or long term remission: my last experience tells me otherwise.
The only real hope out there is replacement of the immune cells with new ones -- either from bone marrow stem cells from my body (auto) or from a donor (allo) transfusion, after four days of chemo and then 3 weeks in intensive care until new immunity takes over. Followed by 3-6 months of recovery.
It would be nice to have some universal donor cells that one wouldn't have to worry about rejection and related chance of mortality.
http://ubb-lls.leukemia-lymphoma.org/...m14/HTML/001513.html
quote:
My father has been suffering with non-H, B-cell large, follicular cancer. He has been through Chop+R and recently went to RICE followed by White Blood Cell transplant. Last week marked 30 days after transplant and he had CAT scan that showed cancer in abdomen area did not shrink (about 6 cm).
His doctor is now recommending Radiation.
I'm getting CHOP-R. Transplant is the next option.
The Leukemia & Lymphoma Society BBS
great. another forum board ...
Thanks all for your support (in emails as well as on the board).
Edited by RAZD, : .

we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

This message is a reply to:
 Message 1 by RAZD, posted 01-03-2007 10:30 PM RAZD has seen this message but not replied

  
tyler121515
Junior Member (Idle past 6151 days)
Posts: 11
Joined: 09-29-2006


Message 25 of 325 (380802)
01-28-2007 9:15 PM


My name is Tyler and I'm from Tyler, TX, and I am proud to be cancer survivor. When I was diagnosed we were living in Colorado at the time. One week when I was 5 years old, my parents noticed that wasn't feeling very well. I had a low grade fever, no appetite, and a ring around my mouth. They took me to the local hospital and ran some tests. They determined I had cancer cells somewhere in my body, likely lukemia, but they couldn't determine for sure what kind or where. The next day we drove to Denver Children's Hospital. We went to the oncology dept. where they ran a bone marrow asperation. Shortly afterwards, a sonogram revealed a malignant tumor growing in my abdomen. I was diagnosed with Burkitt's Lymphoma, a very rare cancer most commonly found in Africa. They removed the tumor (along with about a foot of intestine) during a four hour procedure. I spent the next year in the hopsital undergoing various procedures and extensive chemotherapy. I lost all my hair from the chemo and became very ematiated. As you can imagine, it was a very traumatic experience for a 5 year old, but luckily I survived and have been in remission for 16 years.

Replies to this message:
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RAZD
Member (Idle past 1513 days)
Posts: 20714
From: the other end of the sidewalk
Joined: 03-14-2004


Message 26 of 325 (380806)
01-28-2007 9:29 PM
Reply to: Message 25 by tyler121515
01-28-2007 9:15 PM


Thanks tyler. I can't imagine spending a year in hospital and how strange that must have been, the stress on your parents. 16 years remission is good -- my mom's been going 10 years now with the breast cancer (and still smokes).
Nice of them to name the town for you.
Edited by RAZD, : .

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RAZD
Member (Idle past 1513 days)
Posts: 20714
From: the other end of the sidewalk
Joined: 03-14-2004


Message 27 of 325 (393309)
04-04-2007 10:29 AM


THANKS
I just got this update from WorldCommunityGrid:
quote:
World Community Grid is pleased to announce that the Help Defeat Cancer (HDC) project is finished. The last work units have been sent out and when the final results are returned, the project will come to an end. This project, which launched on July 20, 2006, will have run for just over 9 months by the time the last results are returned. During this time 88,000 members will have donated 2,900 years of computer time on 138,000 different computers. This is a significant contribution to cancer research.
But the end of this project is really only a beginning. Based on the results, the researchers who are working on this project have a very aggressive plan to make Tissue Microarray technology an integral part of early cancer detection.
Early detection is to the benefit of all.
As a side note, I have now finished my second course of chemo-therapy. This should knock my cancer down to background levels, and this will be measured on Friday (but I won't know for a while). Then it will be a matter or moving on to a more aggressive program to hopefully eliminate it from my lymph system and prevent another recurrence. That will start in mid-May, and I am NOT looking forward to it (a week of chemo, bone-marrow transplants, hospital food, etc etc).
My energy level these days is low. A two-block walk to the coffee shop leaves me winded. I hope to regain sufficient energy to do my friends bike ride before the hospital treatment. We are talking about Cinqo de Mayo and possibly doing it (60 miles) over two days.
Anyone in the area that is interested in joining, we will be using the east bay bike path from Bristol RI to E. Providence. Time and details to follow.
Thanks.
Edited by RAZD, : .

we are limited in our ability to understand
by our ability to understand
Rebel American Zen Deist
... to learn ... to think ... to live ... to laugh ...
to share.


• • • Join the effort to solve medical problems, AIDS/HIV, Cancer and more with Team EvC! (click) • • •

Replies to this message:
 Message 28 by jar, posted 04-04-2007 12:39 PM RAZD has seen this message but not replied
 Message 29 by Tusko, posted 04-04-2007 1:07 PM RAZD has seen this message but not replied
 Message 30 by macaroniandcheese, posted 04-04-2007 5:37 PM RAZD has seen this message but not replied
 Message 32 by Taz, posted 04-04-2007 7:53 PM RAZD has replied

  
jar
Member
Posts: 34125
From: Texas!!
Joined: 04-20-2004
Member Rating: 3.2


Message 28 of 325 (393324)
04-04-2007 12:39 PM
Reply to: Message 27 by RAZD
04-04-2007 10:29 AM


Re: THANKS
Great news RAZD and my prayers are still with you.
And my thanks as well to all the members who helped with this effort. Together Team EvC has contributed over 30 YEARS of computer time to projects that will hopefully help all mankind.

Aslan is not a Tame Lion

This message is a reply to:
 Message 27 by RAZD, posted 04-04-2007 10:29 AM RAZD has seen this message but not replied

  
Tusko
Member (Idle past 209 days)
Posts: 615
From: London, UK
Joined: 10-01-2004


Message 29 of 325 (393332)
04-04-2007 1:07 PM
Reply to: Message 27 by RAZD
04-04-2007 10:29 AM


Re: THANKS
I missed this topic the first time round, so I didn't realise that you were in any kind of lymphatic difficulty. I hope you are feeling okay. I've not had cancer, nor any serious health difficulty so far, so the only way I can relate to your experience is through my experience of other sick people, crap though that is. A workmate has just had a dose of breast cancer, and I was impressed with how stoic she seemed to be about it. But then maybe if it is happening you just get on with it as best you can?
Your contributions here are very high quality, despite (or because of?) the chemical miasma you are having to endure.
For all the good it will do, my thoughts are with you. Well, they are right now. I bet in five hours I'll be sitting watching an episode of Twin Peaks, and RAZD won't be figuring on my emotional radar. But until then.
Also, if you don't mind throwing your lymphatic system wide open to us (metaphorically speaking) I'd really appreciate you letting us know how things go in future.

This message is a reply to:
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macaroniandcheese 
Suspended Member (Idle past 4035 days)
Posts: 4258
Joined: 05-24-2004


Message 30 of 325 (393380)
04-04-2007 5:37 PM
Reply to: Message 27 by RAZD
04-04-2007 10:29 AM


Re: THANKS
i'd recommend naps and tea and a kitten. kittens help with napping and also give a little boost of energy, at least mentally.
also, you could take up a low-impact exercise routine, like swimming or aquarobics. also, hot ladies in suits.

This message is a reply to:
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